文献类型：期刊文献

英文题名：Family quality of life of Chinese families of children with intellectual disabilities

作者：Hu, X.[1,2];Wang, M.[3];Fei, X.[4]

第一作者：Hu, X.

通讯作者：Hu, X[1]

机构：[1]Univ Kansas, Beach Ctr Disabil, Lawrence, KS 66045 USA;[2]Beijing Union Univ, Coll Special Educ, Beijing, Peoples R China;[3]Univ Calif Santa Barbara, Gevirtz Grad Sch Educ, Santa Barbara, CA 93106 USA;[4]Beijing Normal Univ, Dept Special Educ, Beijing 100875, Peoples R China

第一机构：Univ Kansas, Beach Ctr Disabil, Lawrence, KS 66045 USA

通讯机构：[1]corresponding author), Univ Kansas, Beach Ctr Disabil, 1200 Sunnyside Ave,3136 Haworth Hall, Lawrence, KS 66045 USA.

年份：2012

卷号：56

期号：1

起止页码：30-44

外文期刊名：JOURNAL OF INTELLECTUAL DISABILITY RESEARCH

收录：;Scopus(收录号：2-s2.0-83755207666);WOS:【SSCI(收录号:WOS:000298092900003)】；

语种：英文

外文关键词：Chinese families; family quality of life; intellectual disabilities

摘要：Background The concepts of quality of life and family quality of life (FQOL) are increasingly being studied in the field of intellectual disabilities (ID) in China as important frameworks for: (1) assessing families' need for supports and services; (2) guiding organisational and service delivery system changes; and (3) evaluating quality family outcomes. The present study focused on exploring the perceptions of Chinese families who have a child with an ID regarding FQOL as well as examining the factor structure of FQOL concept from Chinese families. Methods The Chinese version of the Family Quality of Life Scale was used to survey Chinese families living in the urban and suburban areas of Beijing who have a child with ID. A total of 442 families participated in this study. Confirmatory factor analysis was used to test the factor structure of FQOL. Multivariate analysis was also used to examine group differences among families in terms of family demographic variables. Results A five-factor structure of the FQOL construct was found in the Chinese sample, suggesting a similar factor structure found from US families in the literature. Different living conditions (e. g. housing and transportation) tended to affect significantly families' satisfaction ratings of their FQOL. It is also found that family income and severity of disability of the child are predictors of families' satisfaction ratings of FQOL. Conclusion The preliminary findings of this study suggest a cross-cultural factor structure comparability of FQOL between samples in the USA and China. Results call for further examination of the family-centred service and support as a mediator on the interactive relationship between family characteristics, family needs and FQOL outcomes.